Persons Reported to be living with HIV infection and with AIDS reported
Year Adults/Adolescents Children Under 13 Years old Total Cumulative Totals
  HIV AIDS HIV AIDS HIV AIDS Adults / Adolescents Children Under 13 Years old Total
2000 Confidential 6,770 Confidential 58 Confidential 6,828 6,770 58 6,828
2001

Confidential

7,318

 Confidential 50 Confidential 7,368 7,318 50 7,368
2002 Confidential 7,988 Confidential 38 Confidential 8,025 7,988 38 8,025
                   

 

HIV Infection Cases  from areas with confidential HIV infection reporting
Year   Cumulative Totals
    Adults / Adolescents Children Under 13 Years old Total
2000 Confidential Confidential Confidential Confidential
2001 Confidential Confidential Confidential Confidential
2002 Confidential Confidential Confidential Confidential
         

 

Adult/Adolescent HIV infection and AIDS cases reported in the United States
Year Males Females
  HIV AIDS HIV AIDS
2000 Confidential 869 Confidential 327
2001 Confidential 592 Confidential 245
         

 

New Pediatric AIDS cases reported

Year
2000 1
2001 5
2002 0
   

 

AIDS cases and annual rates per 100,000 population by Metropolitan area reported through 2001

 

 1999

2000

 2001

Cumulative Totals
City No No. No. Adults / Adolescents Children under 13 Years old Total
Boston 1,196 1,013 659 14,758 187 14,945
Springfield 176 147 94 1,822 24 1,846
             

 

 

Cumulative AIDS Cases

Cumulative Number of AIDS Cases, Reported through 2002 17,774
Cumulative Number of Adult/Adolescent AIDS Cases, Reported through 2002 17,561
Cumulative Number of AIDS Cases in Children <13, Reported through 2002 213

Distribution of Cumulative Adult/Adolescent AIDS Cases by Gender, Reported through June 2002
  MA USA
Men 13,556 680,909
Women 3,593 146,298
Total 17,149 827,208

 

New AIDS Cases

New AIDS Cases, Reported through 2002 810
New Adult/Adolescent AIDS Cases, Reported in 2001 760
New AIDS Cases in Children <13, Reported through December 2001 5

Distribution of New Adult/Adolescent AIDS Cases by Gender, Reported through June 2000
  MA USA
Men 537 31,901
Women 233 11,082
Total 760 42,983

 

Persons Living with AIDS

Estimated Number of Persons Living with AIDS at the End of 2002 8,025
Estimated Number of Adults/Adolescents Living with AIDS at the End of 2002 7,988
Estimated Number of Children Living with AIDS at the End of 2002 38
HIV Infection Cases Reported in 2002 Confidential

 

Total Deaths Reported through 2000, due to AIDS = 9,096
HIV Reporting Requirements ?   Yes, Code Based.
 
HIV Testing Options?  Anonymous and Confidential testing
Definitions: Anonymous test: Individual does NOT use their name, and a name is not associated with test result. Anonymous tests are offered at anonymous testing centers, available in many, but not all, states.
Confidential test: Individual DOES use their name. If test is positive, individual's name will be known to their health care provider and, potentially, to other health care professionals and, in some cases, your state's Department of Health.
 
HIV Testing for Mothers and Newborns
Voluntary or Mandatory Testing?  Voluntary HIV testing; no specific law. State follows CDC guidelines; No specific law or language on testing for mothers and newborns.
Voluntary HIV Testing: All states and the District of Columbia have certified to the CDC that they have measures in place to implement the CDC's 1995 recommendations on HIV counseling and testing of pregnant women.  The CDC's 1995 recommendations state that HIV testing of pregnant women and infants should be voluntary and providers must obtain informed consent for testing as required by their state laws.  Voluntary testing is noted if the state follows the CDC guidelines but does not have specific guidelines for testing of mothers and newborns.
 
Status of State Medicaid Expansion Efforts for People with HIV
Approved 1115 Waiver, TWWIIA demonstration? Yes, State has an operational 1115 Waiver that expands Medicaid eligibility for people with HIV.
Definitions: 1115 Waivers: Section 1115 of the Social Security Act authorizes the executive branch of the Federal government to waive the statutory and regulatory provisions of the Medicaid program. States have used "1115 waivers" to make changes in eligibility, benefits, and other areas of their Medicaid programs. The Centers for Medicare and Medicaid Services (CMS--formerly known as the Health Care Financing Administration) and several states have been analyzing the implications of expanding Medicaid eligibility to people with HIV prior to disability through the use of Section 1115 waivers of the Social Security Act. To use 1115 waivers, states face several challenges, particularly the need to demonstrate "budget neutrality" to the Medicaid program - that the costs of an expansion over a designated period of time (usually 5 years) would not exceed the costs to Medicaid in the absence of the expansion.
Ticket to Work/Work Incentives Improvement Act of 1999: TWWIIA expanded State options under Medicaid by creating new Medicaid buy-in options for working individuals with disabilities and extended Medicare cover-age for working individuals with disabilities. The Act also authorized state demonstration programs to provide Medicaid to workers with potentially severe disabilities, including HIV/AIDS, who are not yet disabled but whose health conditions could be expected to cause disability.
Notes: Most people with HIV who qualify for Medicaid do so by meeting the program’s income and disability standards once their illness has already progressed. Many low income people with HIV may be faced with of having their eligibility postponed until they become disabled, even though there are therapies available that may prevent disability and national treatment guidelines recommend access to early treatment. 1115 Waivers and TWWIIA demonstrations are two ways in which states have sought to address this limitation.

 
Sterile Syringe Exchange Programs?  Yes. State Law allows local governments to authorize syringe exchange if they declare a local emergency due to public health crisis.
Notes: U.S. totals include data from the United States (50 states and the District of Columbia), and from U.S. dependencies, possessions, and independent nations in free association with the United States.
Definitions: Programs in operation: includes both state-sanctioned syringe exchange programs and non-sanctioned programs. Because their operation may not necessarily be authorized, it is difficult to account for an exact number of syringe exchange programs operation across the country; therefore, the list may not be comprehensive.
 
STD/HIV/AIDS Education Requirement?  No, If taught voluntarily, there are no state specific content requirements.
 
Minors' Right to Consent to HIV/STD Services?  Yes.
 

 

Total Ryan White Funding, FY2000   $37,377,064 FY2002  $48,845,635

 

CDC HIV Prevention Funding for States
 FY2001 $9,168,525

 FY2003   $9,241,583

 

 

Total Federal and State Funding for ADAP, FY2001  $14,196,295

Definitions: ADAPs: AIDS Drug Assistance Programs (ADAPs), authorized under Title II of the Ryan White Comprehensive AIDS Resources Emergency (CARE) Act, provide HIV-related prescription drugs to underinsured and uninsured individuals living with HIV/AIDS. Each state or territory administers its own ADAP.

 

 
November 26, 2001

People Living with HIV/AIDS by Health Service Region
 

Data as of July 1, 2001

People Living with HIV

Region - Number

Boston HSR - 1,729

MetroWest HSR - 675

Central HSR - 465

Northeast HSR - 731

Southeast HSR - 775

Western HSR - 654

Unknown - 11

Prison - 463

People Living with AIDS

Region - Number

Boston HSR - 2,411

MetroWest HSR - 894

Central HSR - 644

Northeast HSR - 1,045

Southeast HSR - 1,019

Western HSR - 836

Unknown - 0

Prison - 488

SOURCE: Massachusetts Department of Public Health, HIV/AIDS in Massachusetts an epidemiologic profile, Fiscal Year 2001

Deaths among persons reported with AIDS and Year of Death: MA, 1990-2000

Data as of July 1, 2001

Year - Totals

1990 - 631

1991 - 814

1992 - 912

1993 - 1,042

1994 - 1,207

1995 - 1,143

1996 - 760

1997 - 375

1998 - 300

1999 - 220

2000 - 119

SOURCE: Massachusetts Department of Public Health, HIV/AIDS in Massachusetts an epidemiologic profile, Fiscal Year 2001

AIDS Drug Assistance Programs (ADAPs)
Source Kaiser Family Foundation

 

Total ADAP Clients Served, June 2002  
  MA
#		 US
#
   1,058 80,035

 

ADAP Clients Served by Sex, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  Male 815 77 62,034 78
  Female 243 23 16,702 21
  Total 1,058 100 79,531 100

 
ADAP Clients Served by Race/Ethnicity, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  White 423 40 29,426 37
  Black 233 22 26,245 33
  Hispanic 190 18 19,883 25
  Asian/Pacific Islander 21 2 795 1
  American Indian/Alaskan Native 0 0 795 1
  Other 190 18 795 1
  Total 1,058 100 79,531 100

 
ADAP Clients Served by Age, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  <13 years old 11 1 795 1
  13-19 years old 0 0 0 1 0 1
  20-44 years old 656 62 50,105 63
  >44 years old 391 37 27,836 35
  Total 1,058 100 79,531 100

 
ADAP Clients Served by Income, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  <100% FPL 455 43 38,175 48
  101-200% FPL 212 20 26,245 33
  201-300% FPL 201 19 8,748 11
  301-400% FPL 116 11 3,181 4
  >400% FPL 74 7 1,591 2
  Total 1,058 100 79,531 100

 
Insurance Coverage of ADAP Clients, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  Medicaid 0 0 0 10
  Medicare 21 2 0 6
  Private 497 47 0 13

  
National ADAP Budget, Total Federal and State Sources, FY 2002  
  MA
$		 US
$
   15,049,732 878,610,754

 
National ADAP Budget by Source, FY 2002  
  MA
$		 MA
%		 US
$		 US
%
  ADAP Earmark 13,160,923 87 619,830,000 71
  Title II Base 0 0 28,886,192 3
  State 1,747,990 12 160,385,979 18
  Title I 140,819 1 19,736,619 2
  Other Federal 0 0 30,941,439 4
  ADAP Supplemental Grants 0 0 19,170,000 2
  Total 15,049,732 100 878,610,754 100

 
Total ADAP Drug Expenditures, June 2002  
  MA
$		 US
$
   696,822 70,705,142

 
ADAP Drug Expenditures by Drug Class, June 2002  
  MA
$		 MA
%		 US
$		 US
%
  Nucleoside Reverse Transcriptase Inhibitors 340,159 49 31,486,146 49
  non-Nucleoside Reverse Transcriptase Inhibitors 77,088 11 7,940,575 12
  Protease Inhibitors 160,258 23 16,433,502 25
  Opportunistic Infections/Other 119,317 17 9,015,329 14
  Total 696,822 100 64,875,793 100

 
Total ADAP Prescriptions Filled, June 2002  
  MA
#		 US
#
   4,981 257,279

 
ADAP Prescriptions Filled by Drug Class, June 2002  
  MA
#		 MA
%		 US
#		 US
%
  Nucleoside Reverse Transcriptase Inhibitors 1,590 32 83,166 36
  non-Nucleoside Reverse Transcriptase Inhibitors 461 9 23,933 10
  Protease Inhibitors 596 12 33,813 15
  Opportunistic Infections/Other 2,334 47 87,746 38
  Total 4,981 100 228,771 100

 
Federal ADAP Funds Used for Insurance Purchasing/Maintenance, FY 2002  
  MA
$		 US
$
   1,900,000 18,486,544

 
ADAP Formularies, Number of Medications by Drug Class, 2002  
  MA
#		 US
#
  Nucleoside Reverse Transcriptase Inhibitors 9 NA
  Protease Inhibitors Covered 6 NA
  Non-nucleosides Covered 3 NA
  OI Prophylaxis Covered 14 NA
  Other Medications Covered NA  NA
  Total 32 NA

 
ADAP Emergency Cost Containment Measures, February 2003  
  MA
 		 US
 
  Has ADAP Emergency Cost Containment Measures in Place No 16 Yes
  Notes    

 

Access to Health Care/Boston

Mayor's Health Line
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617-534-5050
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